Fundraiser at Mountain Mike's Pizza
A Glimpse Into Paxton's Life
These pictures of Paxton before his rare disease manifested, remind us of what he was once capable of doing independently, and motivate us to develop a treatment and one day even a cure for mutations on the CLCN6 gene, so he can regain some independence and live his best life.
Video
It Was Rare and I Was There
Paul Purdy, President of Cure CLCN6, gives remarks at "It Was Rare and I Was There", Rare Disease Day event in San Diego, CA.
Paxton's Story
This quick video gives an overview of Paxton's journey and our mission to develop a life saving gene therapy for him.
#Paxton'sPioneers
Introduction to Cure CLCN6
Speech Therapy Session
Paxton receives speech therapy from Tiny Babbles Speech Therapy. This is a clip of a session where you can see how hard he has to work to form mouth movements to communicate. It also highlights how he uses an AAC device to communicate.
Copyright © 2024 Cure CLCN6 - All Rights Reserved.
Cure CLCN6 Inc., is a registered non-profit agency in the state of California. as a Tax exempt 501(c)(3) organization.
EIN: 33-1628589
Donations to cure clcn6, inc., are tax deductible within the guidelines of the u.S. law.