About Cure CLCN6
Our Mission
Cure CLCN6 is dedicated to raising awareness of mutations on the CLCN6 gene, providing support and advocacy to affected children and their families, and funding the research and development of therapeutics, and ultimately a cure.
University of Massachusetts Chan Medical School
This research is led by:
To learn more about the Sena-Esteves lab and the
Gray-Edwards lab, please click the hyperlink on their names.
We Can't Do This Alone
Together, We Can
This is the biggest challenge we have ever faced, but with your support, we can dream of a better tomorrow for our son.
- Donate:
- GoFundMe,
- Venmo: @Cure_CLCN6_Inc
- CashApp ($KristinHerzbergPurdy)
- Volunteer (contactus@cureclcn6.org)
- Subscribe to our YouTube Channel
- Follow us on social media
- Share our story with others!
CURE CLCN6 IS A MEMBER OF THE Rare epilepsy network
Cure CLCN6 is a participating member of the Rare Epilepsy Network.
As reported by researchers at the Max Delbruck Center for Molecular Medicine, CLCN6 gene mutations cause severe epilepsy. The work we are doing will contribute to better understanding epilepsy and gene therapies as a treatment for this debilitating condition.
To learn more about REN, please click here or the image above.